Sunday, July 6, 2008


all is going so well. i was dealing with being more tired and needing to rest constantly to avoid a seizure (de ja vu hallucinations or waking up from sleep in a state of amnesia). i always felt this was because of the drug i was on, keppra. it's a sedative and i could not get my full energy back. it was scary to have to rest or have these seizures. 
my wonderful neurologist allowed me to try to come off this drug starting two weeks ago. i have two more weeks to go of slowly decreasing it. so far i only feel better and more awake and energized. 
if this continues to go so well i will be able to stay off this drug. i cannot wait to feel my new healed brain without the avm they removed and without this drug. maybe i'll be really good at math like my brother is.  july 21 should be my first day drug free. i am so ready!!!!

1 comment:

sue2u1 said...

Hi, my name is Sue I have a brother who has an AVM 3.5X4cm right frontal lobe. Identified after he had a seizure 5/30/05, since he has had two embolizations and radiation. He take Carboltrol for his seizures. It is now three years that he has been unable to work, he currently has brain swelling due to the radiation. I wish we would have been brave like you and had the stupid avm taken out once and for all!!! Hugs to the brave one you go girl - you made the right choice!!